ONTD Political

Internet Crackdown on Pro-anorexia Sites

8:12 pm - 04/19/2012

Two years ago, when Madeleine Bowman began treatment for anorexia, she stopped looking at a pro-anorexia website that for years had served as her community and her source for ideas to nurture her secret illness.

But on Tuesday she was curious and decided to take a look. Fortunately, her login had expired.

Bowman 26, of New York, is in recovery from a decade-long battle withanorexia, she said.

She'd stumbled upon the website in eighth grade, after googling "eating disorders." Bowman had been skipping meals to lose weight and she wanted to find out if she was anorexic. She then visited the site often to find new ways to hide her condition from friends and family.



Given the many social aggregators that spread information to wider and wider audiences, Bowman says that today it would be even easier for someone to find their way to a pro-anorexia site.

That might not be the case for much longer. In March, social sites like Tumblr, Facebook, and Pinterest announced they will remove posts and website information that could promote eating disorders.

"We aim to sustain Tumblr as a place that facilitates awareness, support and recovery, and to remove only those blogs that cross the line into active promotion or glorification of self-harm," Tumblr's revised policystates.

This move is one of many efforts that signal a shift in how the public views eating disorders, according to Claire Mysko, project manager of Proud2BMe.org, a website that promotes awareness of eating disorder

Mysko, who has worked in the field of eating disorders for more than a decade, said the stigma surrounding the disorder is decreasing. More people are willing to talk about their problem, and more are willing to speak up against the unhealthy behavior, she said.

"There aren't as many who are feeling that ashamed," said Mysko. "We're making progress in that area."

The shift in how eating disorders are viewed suggests that prevention and treatment efforts may be working. Hospitalizations for people with eating disorders dropped 23 percent between 2007 and 2008, according to the latest findings from the Agency for Healthcare Research and Quality. This decline was the first ever noted by the federal agency since it began tracking hospitalizations in 1999.

The drop, though, some experts say, may largely be due to the lack of insurance coverage on designated treatments for eating disorders, particularly hospitalizations.

As much as $5 to 6 billion per year is spent treating eating disorder patients in the U.S., with hospitalizations comprising only a small part of the total cost, according to the National Eating Disorders Association. In many cases, patients like Bowman must pay out-of-pocket.

Outpatient services and partial hospitalization programs are becoming more prevalent and accessible, according to Dr. Ovidio Bermudez, chief medical officer of the Eating Disorder Recovery Center in Denver, Colo.

The reason pro-eating disorder websites are so popular among patients, he says, is because they offer the opportunity for someone suffering from an eating disorder to immerse herself in an environment with other like-minded people, where they can learn new, damaging behaviors, Bermudez said.

"Contagion, comparison, and competition are part and parcel of the eating disorder way of living," said Bermudez.

Group therapies offer a substitute community, and are becoming more critical to treatment, he said. Family-based programs, too, have become a key ingredient for many recovering patients, offering reinforcement of healthy behaviors, he said.

Some experts say that heightened awareness about the disorder may be leading to lower hospitalization rates. Family members and physicians increasingly are looking for eating disorder symptoms. Awareness, in turn, may be helping to catch the disorder in its infancy more often, leading to earlier treatment, some experts said, eliminating the need for hospitalizations.

In fact, 78 percent of people believe they have enough information to know if someone were suffering from an eating disorder, according to a 2010 survey conducted by the National Eating Disorders Association.

Better identification of symptoms reflects a heightened awareness about the types of conditions, said Mysko. The survey also found that a majority now view eating disorders as a physical or mental condition, rather than just a lifestyle choice.

Still, as many as 11 million Americans have an eating disorder, 4 percent of whom die each year from the disease, according to the National Eating Disorder Association. Although the stigma has waned over the last decade, the number of people who have an eating disorder, and the number of people who die each year from the disorder remain consistent

"We are actually seeing more complex cases," said Bermudez. These cases require more comprehensive treatment programs that should be approached with the same seriousness as patients who suffer from any other physically and mentally debilitating disease, he said.

But effective treatment means more than therapy and medical care, Mysko said. Removing societal pressures by limiting easy access to those promoting eating disorders can be a crucial part of treatment, she said.

"It's an illness that has physical symptoms, but it's also a complex psychological disorder," said Mysko.

Source



anus 20th-Apr-2012 01:15 am (UTC)
I'm kind of glad about the crackdown. It was actually the major proana community on LJ that got me to my worst. It seems like ALL the proana/mia communities will tell you that they aren't there to give you advice on how to starve/purge/etc and that they are just there to help others get through a terrible situation, but it's not true. Yes, they will applaud you for finding recovery, but they will also encourage you on your 'good work' when you succeed in starving. Those girls will cheer you on when you tell them you're happy that you only had 50 calories that day. They'll tell you they wish they had your strength to do so well. If someone is upset about binging on cake, then those girls will be there to tell you it'll be better tomorrow. You'll starve yourself better tomorrow. You see everyone's posts about what they didn't eat that day and you wonder why you couldn't do as well as them. You push yourself to eat less like them. I understand wanting a support system because people aren't comfortable telling someone IRL about this issue, but it's not healthy to get 'support' that way.

Edited at 2012-04-20 01:17 am (UTC)
yeats 20th-Apr-2012 01:18 am (UTC)
this. i created a secret journal on gj because i didn't want my friends to know what i was doing, and i would post my hw/lw/cw/gw there and get comments "cheering me on." it was not a good way to be.
escherzo 20th-Apr-2012 01:47 am (UTC)
Yeah, I did much the same thing myself. Many of those places--if there is a focus on recovery I haven't seen it, and if anything the competition (explicit or not, some people are just by nature competitive) to 'do better' than the others just creates a downward spiral.
destructo_ray 20th-Apr-2012 03:51 am (UTC)
This was my experience as well.
spiffynamehere tw for discussion (occasionally graphic) of SI20th-Apr-2012 06:29 pm (UTC)
SI communities are also kind of difficult sometimes. I'm a member of a few because I was looking for some that would be helpful, and I found some that... I wouldn't really call it pro-SI, but there were some posts that weren't exactly promoting recovery (like someone posting a picture of the pattern their blood made and saying it was pretty - that was genuinely trigger-y for me). And for me anyway, sometimes seeing things about others' injuries makes me feel weirdly guilty if I haven't done anything for a while.

At the same time, though, sometimes it's genuinely helpful to have a community around who understand what it's like and won't judge you for it, not to mention the occasional piece of advice on how to make things safer/avoid getting infections.

...so yeah. Complicated. /cool story sis
nahele_101 20th-Apr-2012 01:44 am (UTC)
Now will LJ follow suit? I swear there are at least a dozen pro-ana/mia sites on this website.

zeonchar 20th-Apr-2012 02:21 am (UTC)
Seriously.
tinylegacies 20th-Apr-2012 03:38 am (UTC)
god I hope so

I discovered those comms eight years ago when I first joined LJ and it made me SO SAD

especially because I found them by searching for "dieting" and "healthy eating"
mornings 20th-Apr-2012 05:36 am (UTC)
Yeah, I did a bit of research and found during that half-hour at least ten or fifteen members-only communities that positively screamed pro-ana. :(
vvalkyri 20th-Apr-2012 02:23 pm (UTC)
I think they come and go as they're Noticed -- my first glimpse of pro_ana was when it suddenly dawned on me what pro_scurvy was parodying; both are now gone.

(that was a very weird night, which included also reading feeder pr0n I found by surfing past NAFFA. sadly, this was all before I was using Gmail for comment notification, so the resultant post is unfindable)

Edit: seems pro-scurvy's been deleted and purged, but there's another pro-ana.

Edited at 2012-04-20 02:24 pm (UTC)
tei_0 20th-Apr-2012 02:32 am (UTC)
I'm really conflicted about this. On one hand... the pro-ana community was my introduction to lj and it was not a good time. It was a shitty, shitty place. I just went back there and... they seem to genuinely have turned into a recovery community? Although I have no idea if it's still active or what goes on that's community-locked, obviously. So I am, in theory, all for getting rid of pro-ana sites. But something just feels off about censoring content on the grounds that it's a bad influence. The whole point of web 2.0 is that sites like tumblr exist to host user-generated content. Unless the material being posted is acutally illegal-- in which case obviously the company has to act to protect itself-- these sites should not act as curators for their content. The most frequent type of post that qualifies for censorship is hate speech, which is illegal, but I really can't find anything illegal about sharing unhealthy attitudes towards food with others on the internet. It's not tumblr's job to be a parent, a friend, or a doctor to its users.
post_position 20th-Apr-2012 02:38 am (UTC)
I guess the question is then, how responsible is a website for the content posted using it's servers? A website has every right to dictate what can and cannot be posted. If tumblr doesn't want pro ana tumblrs because of the dangers they pose they can remove that content.
makemerun 20th-Apr-2012 02:54 am (UTC)
The most frequent type of post that qualifies for censorship is hate speech, which is illegal,

But aren't most large user-content websites such as tumblr American based? I thought LJ is one of the exceptions. Hate speech is not illegal here, and is actually considered protected.
seraangel 20th-Apr-2012 03:08 am (UTC)
As far as I'm aware, free speech is only protected from your Government cracking down on it. Actual corporations can do what they want.
makemerun 20th-Apr-2012 03:09 am (UTC)
Right, corporations can ban any content that they want-- I was just commenting that hate speech isn't illegal.
tei_0 20th-Apr-2012 03:14 am (UTC)
Urgh, I was thinking in Canadian but you're right. In that case I suppose American sites relying on user-generated content have even less of a platform to censor or curate content...
totesmasc 20th-Apr-2012 03:49 am (UTC)
huh? they can censor anything they want. if you run a website, you can ban anyone you want from saying anything you don't think is appropriate. tumblr is not the government, and as such "freedom of speech" doesn't have anything to do with what tumblr or any other social media website choose to not allow on their sites. (unless i am misunderstanding what you're saying, in which case, sorry)
tei_0 20th-Apr-2012 03:56 am (UTC)
I don't mean that it has anything to do with free speech or that there's any obligation involved, really. Of course according to the law they can ban whatever they want to. But by and large, the successful, long-lasting and interesting bits ofthe internet are the bits that build the platform and let users do with it as they please.
little_rachael 20th-Apr-2012 03:32 am (UTC)
i remember that back when stupid_free was more high-traffic than sf_drama, there were posts mocking posts made by people with EDs. But now, on sf_drama, picking on people with EDs is frowned upon. Even in the short time I've been active in these communities, the perception of people with eating disorders seems to have changed for the better.
ten_of_swords 20th-Apr-2012 03:03 pm (UTC)
Tumblr and Pinterest are still full of thinspo pictures, but I think that's going to be impossible to crack down on because super skinny women are the fashion and societal ideal. How can you really tell people to stop looking at pictures online that are on billboards, magazine covers, and the major majority of tv and film?
scrawl42 21st-Apr-2012 05:03 am (UTC)
they could ban the tags "thinspo" and "thinspiration". But of course then other terms would crop up.
ten_of_swords 21st-Apr-2012 03:05 pm (UTC)
I thought tumblr was supposed to redirect you to a support site if you searched terms like "thinspo," but I just tried it and still got skinny people. Hrm.
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